Sunday, December 4, 2011

Cathing is Going Great!

Much to my surprise, cathing is going amazingly well! It's not something I ever imagined myself having to do! To anyone. Let alone my baby! BrynLee's such a tough little thing! She takes it like a champ! The first couple of times she would cry a little, I think more because it was uncomfortable rather than in pain, but it didn't take her long to get used to it. Now she just lays there and eats her cute little toes the whole time! We're getting anywhere between 15-40mls, depending on the time of day. I usually get the most in the morning and it just gradually decreases as the day goes on. The last cath of the day I usually get about 15mls. Sometimes she'll surprise me and we'll get alot more than I expected, but that's ok, the more the better!
Up until the last 2 days or so BrynLee would NOT put any weight on her legs! I've had her in her Jumperoo for a while now and she'll jump in that, which obviously requires her to put weight on her legs, but when I hold her up and try to get her to stand her little legs just hang there like broken sticks! I was worried about it, but her urologist didn't seem too concerned. Well all of a sudden, she wants to stand! WOOHOO! She even arches her back and throws a little BrynLee fit if you try to set her on her bum! :) It's nice to see her get mad about something and have a little stubborn-ness because she's always just been so laid back! She may have a little Hutchison blood in her after all! LOL.. :)
She's also eating her little toes! That is my absolute favorite thing for a baby to do! I loved the look on her face the first time she saw her toes! She'd pull her feet up and the look on her face said, "Where the heck did these things come from!" Then she'd put her feet back down, bring them back up and she was surprised all over again! LOL.. It didn't take her long to decide she'd like to put these new mystery toes in her mouth! Now that's all she does! She even gets fussy when I put her in jammies with feets in them because she can't get to 'em! :)
At her last appointment she weighed in at 13lbs 4oz! She's getting SO big! We also did measurements and she's got an average sized head, she's right at 50% on her weight and she's a whopping 96% on her height! WOW! I knew she was long, but that number just shocked me! Those of you that know Jocko and I can appreciate why we're so shocked to have a baby in the 96% on height! I'm sure it won't last long, but hey, we're impressed for now! : D
Right now we're treating BrynLee for an infection. She has a bacteria called Pseudamonas in her system, which she's actually had for a while, but her counts are getting really high, even though BrynLee isn't showing any symptoms of having an infection! :( We're currently on day 2 of a 10day treatment of Cipro and then we'll be checking her levels again! If her Pseudamonas isn't down SIGNIFICANTLY we'll be admitting her into the hospital for a 5-7 day IV treatment. If that doesn't work, I don't know what the hell we do! I just pray that something helps! We've tried the Cipro before and it didn't work then, so I'm a little skeptical that it will work now, but we have to do something! Her last dose of the Cipro is on the 12th, so we'll test another sample on the 14-15ish, and we'll have results back on the 18th.. If it's not gone, guess where we'll be for Christmas! Yep, that's right! Primary Childrens! I coudn't think of a better place to be! ; )
Hopefully between the cathing and the Cipro we'll get little missy back to 100%.. (I'm not sure if she's ever even BEEN 100%)

1 comment:

jessica said...

Hi Chelsey, =) Jess here from the Facebook page =)... hope you dont mind me adding you on FB ^-^.

Just read a little bit and seen the photos... its amazing how strong these children are and so much going through (sorry for my grammar if I mess up a bit ^^ ) when so little.
My Emilie (Em) was in hospital for about a month after birth... it was a very rough time as her kidneys were function well either.
It was so much at that time that was going on... (all my kids are born in the UK).
When she was born I got ill from hospital as well which i didnt know, and the idea of me bringing it to my little girl makes me really upset as we all are sure i got it from the hospital.
But all worked out fine with that.

But as I saw your photo of Brynlee
She had the Operation other way around.. Em had her hips cut and she was plaster as a A with a stick side ways stuck on her heels to other heel (hmm not sure I am explaining that right, as it sounds a bit weird but i am sure I have a photo of it and I can show you if you like.)

She was like that for about 3-4 weeks her only 2movment" with her legs was her feet... sure I am giggle about it now.. but then it wasnt so much fun as it took her long time to get out of her "rotations of her feet, around and around" to keep her sane ^^.

So sorry I am writing you a letter, I just haven't found anyone to talk about this to.
I might start doing a blogg in Eng for just her as well... not sure... i got 3 lol, guess I am a bit of a blogg nerd ^^.
One of family, one diary and one weeding one lol... talk about being a silly muppet = ).

Anyhow... will leave you now after have pored out my little life of Em to you. Hope you have a good day. Jess