Left Wondering

Of course, nobody can predict the future.. Nobody knows what's in store for themselves! Nobody knows what's in store for their children! I constantly find myself wondering what life is going to be like for BrynLee. Questions run through my head every day!

Will she walk on time?
Will she walk normally?
Will she walk at all?
Will she ever ride a bike, or a horse?

When will her next surgery be?
How many more surgeries will she have to have?

Will she ever gain continence?
Or will she have to cath the rest of her life?

What will school be like, will she be made fun of?
How will she deal with dating, boys and the the gym locker rooms?
Will she get married?
Will she ever get to have babies of her own?
If she does have a baby, will it have Bladder Exstrophy too?

I know the answers to these questions are years away, but they still pop into my head every day! Every time I look at her!
BrynLee is so beautiful! (Maybe I'm biased because she's mine, but I just think she's such a pretty little girl!) And not just on the outside, but on the inside as well! She's so happy and easy going! She's so laid back! She's content doing just about anything and she loves EVERYONE!

There are different ways people handle Bladder Exstrophy! Some people keep it a secret and tell only the closest of family members and friends! They hope to keep the child from being made fun of and spare them the shock of people finding out about their disorder!
Some people are open and tell the world! I'm one of those people.. If everyone knows, there's no opportunity for shock when people find out. Everyone will already know, and it will be nothing new to them! Everyone will already be supporting her I think the best way for BrynLee to handle this is to be open about it! We don't have to share every single detail with everyone, but share the basics and keep everyone informed about what's going on and what progress she's made with each step down the road!
I love my little girl so much and no matter what she does or doesn't do in her life, she'll always be my little angel! My little miracle baby!