Monday, November 7, 2011

BENEFIT DINNER TO BE HELD TONIGHT


REMINDER:
BrynLee Hutchison Benefit Dinner/Auction
TONIGHT
 Monday, November 7, 2011
6:00 PM
Raft River High School Gym
All are welcome to attend!
Dinner is $5 per person or $20 per family!

Thank you so much to everyone that has helped us spread the word about BrynLee's benefit! We love all of you so very much! BrynLee is feeling great this morning and will be at the dinner tonight! Come meet this precious baby girl! Can't wait to see you all!

BrynLee had her first news interview yesterday! Check out the video here.

Thursday, November 3, 2011

She's Back

My sweet baby is back to herself!
She's smiling. Giggling. Kicking her feet 100 miles an hour!
No fevers for 2 days! And ALMOST slept all night last night!
I wish there was a way we could prevent these infections. Well, that's what her prophylaxis antibiotic is for, but why isn't it working? She's been on 3 different ones, none of which have prevented an infection! I really wish we could get this figured out and keep her infection free for more than 3 weeks!
Any of you BE parents out there, any and all suggestions would be greatly appreciated! I'm getting really frustrated with it! I know it's part of her conditions, she'll have these infections, but does she really have to get one every single month? Like clockwork?
Her little teeth still won't come through.. They're going to be little teasers! Today the left one is way up and the right one has sunk back down some! They are both still there, both very visible, but still under the gum! At least now she doesn't seem bothered by them at all! :)
With that said it makes me wonder if the entire 3 days before we finally took her in it was her infection making her so uncomfortable, not her teeth! She's going to be my little guessing game! Is it teeth, or an infection.. Is it the flu, or another infection..
Fun huh.. I'd rather go to the hospital 100 times and learn it's something like teeth or the flu than to hear she has another infection! I can't wait for the day I rush her to the hospital and the doctor tells me, "Well, it's not her urine, it must be something else!" Right now it feels like I'll never hear those words! :(
For now I'll enjoy her being so happy!
We'll go back to tummy time and work on her getting that wild head under control!
We'll play and giggle together!
We'll splash in the bathtub!
My absolute favorite thing she does is when she's eating! I still hold her for every bottle and sometimes she's not as hungry as she makes me think and she just wants held. I'll put her bottle in her mouth, she'll suck about 3 times, then give me the biggest smile! All the milk will run out of her mouth all over both of us, but I don't care!
That smile..
She's so beautiful!

Today is her daddy's birthday! Happy Birthday Daddy!

Wednesday, November 2, 2011

In The News

Just wanted to share the article that was in the newspaper! Please feel free to check it out!
Mini Cassia Voice

I also wanted to update on how BrynLee is feeling! She's not quite herself, but I think it's her teeth holding her back! I really hope that by Monday she's feeling better so we can have her at the Benefit Dinner! She has been without a fever for almost 24 hours now and for the most part she's pretty happy! She smiling and even giggling again, so that makes mommy very happy! :)
Thank you all that have shared BrynLee's story with you friends and family! Please keep it up!